One of my close neighbors battles Parkinson’s disease. He is a respected member of our community. He and his wife raised a family of admirable children, and are gracious neighbors. After a winter storm, if you did not have the snow cleared off your walks by 7:30 in the morning, he would be along to clear them for you.
His wife is his primary caretaker. As you can imagine, she gets a little tired from time to time. She finally consented to let me come and sit with him, while she does some laundry, relaxes on her own, or takes a nap. I’ve gotten to know my neighbor really well. Today we had a good conversation about river running and travel, in between a nap or two.
My neighbor was diagnosed about four years ago. His onset has been quicker than most. An infection he developed about a year ago accelerated the progression of PD. He can't walk, and his motor abilities are severely limited. But he's still a great conversationalist.
During one of my visits, a team from a home health agency dropped in to address some bedsores and other issues. Their helpfulness and compassion were a boon to his wife as they coached and encouraged her. It was a refreshing experience.
I also took some time to speak with his wife, and find out what she had learned from the doctors. After listening to her, I was concerned about the quality of relationship she had with her husband’s physician. I wondered how much better he could function if she and the physician were more aggressive and experimental. I admit, my wondering may be fruitless, and he may not have many options at this point. Nevertheless, I wondered.
I know these neighbors well enough that I dared bring up the idea of a second opinion. I was a frequent patient for a chapter of my life, and I have worked in health care for a decade. You will not offend most physicians if you introduce the idea of a second opinion, in fact most physicians encourage them because they offer invaluable insight.
You may have had a question, or wonder about your current course of treatment. A second opinion may offer you treatment options, peace of mind, or education. To pursue a second opinions, find a well-respected movement disorder specialist in your area, and make an appointment. Your current physician may suggest someone he or she respects. Prepare for your visit by making some notes on your medical history, especially as it pertains to Parkinson’s disease. Compile a list of symptoms, recent challenges, and current medications. During the appointment, you share your personal information, ask questions, and then listen to the physician's suggestions.
Finally, make sure you relay what you learned to your current physician.